Angiosarcoma Awareness, Inc.

Patient-driven research and resources for the angiosarcoma community

We support patients, fund targeted research, and share open data to accelerate progress against one of the most aggressive and rare cancers.

Patient resources

For patients, caregivers, and families navigating angiosarcoma.

Community support group
Finding experienced sarcoma centers
Clinical trial guidance
Financial support for second opinions

Go to patient resources

Data & research

For researchers, clinicians, and anyone exploring the science of angiosarcoma.

Open molecular datasets
Published studies
Grant funding & inquiries
Grant history

Go to data & research

A note on urgency

Angiosarcoma does not behave like many other cancers. Patients often say they wish they had understood early on that getting evaluated at a high-volume sarcoma clinic with expertise in angiosarcoma is crucial. Learn more in Patient Resources

About Angiosarcoma Awareness

One of the most aggressive cancers

Angiosarcoma has a 5-year overall survival rate of 30% and accounts for only 0.1% of adult malignancies. Unless we create a patient-driven initiative, our rare cancer will never be the focus of large-scale scientific endeavors.

30%

5-year survival rate

0.1%

of adult malignancies

274

patients in open dataset

Read our full story on the About page

How we were founded

Founded by Lauren Ryan and Corrie Painter, who battled primary angiosarcoma of the breast. Lauren passed away on June 19, 2014. We continue the mission in her honor.

Our mission

We identify laboratories conducting angiosarcoma research and raise funds to support their work — revealing the molecular underpinnings that might tailor individual therapies.

Angiosarcoma Cancer Group

Peer support community on Facebook

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Help keep this research going

Your donation directly funds angiosarcoma-specific research and shared resources that benefit patients worldwide.

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Angiosarcoma Awareness, Inc.

Patient-driven research and resources for the angiosarcoma community. IRS approved 501(c)(3) public charity. EIN 27-3363947

Resources

Patient Resources Data & Research What is Angiosarcoma Grant History

Organization

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Community

Facebook support group