Patient Resources
Guidance, community, and practical support for patients and families navigating angiosarcoma.
A note on urgency
Angiosarcoma does not behave like many other cancers. Patients often say they wish they had understood early on that getting evaluated at a high-volume sarcoma clinic with expertise in angiosarcoma is crucial.
Your first steps
A simple path through everything on this page. Start at the top, or jump to what you need now.
- Get evaluated at a sarcoma center Experience with angiosarcoma matters.
- Ask your team the right questions Four questions to bring to appointments.
- Explore clinical trials Where new treatments are tested.
- Get help with second-opinion costs Grants can cover travel and consults.
- Connect with others who understand A peer community of patients and families.
Finding experienced care
Many patients seek care or second opinions at centers with dedicated sarcoma programs.
Sarcoma treatment centers
We reference the sarcoma centers identified by the Sarcoma Foundation of America (SFA) as a starting point.
View SFA treatment centers (opens in a new tab)This list reflects sarcoma expertise broadly. Contact centers directly and ask about their angiosarcoma experience.
Questions to ask your care team
- Has your team treated patients with angiosarcoma?
- Is my care discussed in a sarcoma tumor board?
- Will your team help investigate clinical trial options?
- How is care coordinated with my local oncology team?
Clinical trials
Clinical trials are often where new sarcoma treatments are tested. You can search on your own, but it is often more effective to ask your care team to look for relevant trials and discuss options together.
Search tip: because angiosarcoma is rare, trials may be listed under “sarcoma” rather than “angiosarcoma.” Try both.
Search ClinicalTrials.gov (opens in a new tab)Help with second-opinion costs
Some patients may benefit from financial help to get a second opinion at a sarcoma center. The Sarcoma Alliance offers Second Opinion Grants that may help cover travel and consultation costs.
Sarcoma Alliance grants (opens in a new tab)You are not alone
Because angiosarcoma is so rare, many patients and families find each other online. The most active peer-led space is the Angiosarcoma Cancer Facebook group.
This page shares information to help you find care and support. It is not medical advice. Talk with your care team about decisions for your situation.